Posts Tagged ‘quality of life’


If The Shoe Fits

September 29, 2009

I’ve been doing a lot of research and networking on MS sites lately.  I spread the word about my own blog that way and I learn a lot in the process.   I have found a lot of blog sites where conversation is quite lively and other sites that give information of all kinds.  Even better, I’ve made some new friends from all over the world.  You can meet some of them in the comment section of my blog here or on my Facebook pages linked in the right margin. The question and answer type blog sites are packed with people and they talk about all kinds of things…mostly related to MS, but sometimes not…interesting either way!  I look forward to meeting more of you commenting on my blog stories and starting conversations here, too.

Someone asked me the other day why I put links on my blog that don’t exactly match my way of thinking….well duh!  I am sure that everyone reading my blog has a mind of his or her own and might think differently from me!  I put links on here that have information of all kinds and from as many sources as I can find not only because I want to know what’s going on out there but also because the more information you and I have, the better we can evaluate what treatments and approaches might be best for us in our individual situations. 

My thought is, read all the information, try it on for size, and if the shoe fits, take it home with you.  If not, leave it for someone else.

When I go see the doctor, I like to go with questions and topics in hand that I’ve read about online and think might be worth considering for my own treatment.  That has often helped my doctor and me to better match treatment options to my needs and my preferences and thereby choose treatments that work best in my life, and that’s very important.  After all, treating our MS is really about maintaining quality of life and understanding how that is defined by each of us as individuals is the key to achieving the best quality of life possible. The only way to really do that is to consider the pros and cons of all the options, to hear the info from the doctors, the drug companies, and the patients who go before us, and then really think about how we feel those options would, or would not, make our lives better.  We have to be well informed in order to participate in defining and maintaining the life we can have despite MS.  It’s by participating that we will get what we want…to the degree that it’s possible.

I work on this research and networking almost every day and I find more stuff to list almost every day.  Even when I don’t find a new site, I find new info posted on sites I frequent and that’s great, too.

I hope you’ll take a look at the Links page in the right margin and check it regularly for new ones.  I look forward to a growing group of you joining our conversations here and on my Facebook pages, too.  I am so enjoying getting to know you all!